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An Inspiring Dream For the Blind

Posted: Monday, October 06, 2008 10:29 AM by Sarika Dani

From Josh Weiner, TODAY producer

Imagine losing your vision - and finding a way to ski, sail, bike and continue all your passions. It sounds impossible, right? Not if you're Ed Gallagher. I met Ed recently for our TODAY story. Inspiring is the word sums up this his outlook on life.

Ed grew up near a Michigan lake, and he jokes that he "sailed" out of his mother's womb. A building contractor by profession, Ed always embraced the outdoors his entire life. Sailing became an integral part of his routine. But in his late 40s, Ed was diagnosed with a degenerative eye disease. His vision began to fade slowly over several years, and he feared his sailing days were over. But Ed, 57, who now lives in San Francisco, came across a group called BAADS - The Bay Area Association of Disabled Sailors. The club is a comprised of folks who have all types of disabilities, but with the help of one another and many able-bodied volunteers, organized regular sailing ventures in the beautiful bay water.

Then Ed came up with an amazing idea he calls "Genoa Connections." Named after his beloved guide dog, it's a seemingly simple, yet brilliantly clever remote guidance system. Ed mounts a web-camera to a strap around his forehead, and the camera wirelessly transmits the live video over the Internet using free software called Skype. Ed's friends take turns acting as his guide. Both wear microphones and earpieces, and talk back and forth as the guide tells Ed what he's "seeing." He's testing the barriers, and regularly uses it to sail, but also tries shopping, cross country skiing and even biking in Golden Gate park.

Ed has started an organization where he hopes to refine and mass-produce his system, so other blind people all around the world can use it too. Certainly it's not going to replace the time-tested travel tools like a white cane or guide dog (which already enable the blind to get around independently). But Ed believes it can greatly augment the lives of the blind and vision impaired through advancing technology.

His dream doesn't end there. Ideally, Ed says, homebound individuals, through a government agency, like the Department of Rehabilitation, would serve as the guides. That way it's a win-win. And according to Ed, the experience is just as rewarding for the guide as for the blind person. When our correspondent, Jenna Wolfe, told Ed he seems like someone who always see the glass-half-full, he paused. Then, grinning,  he responded, "that's what my mother always said!" Watch video here.

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Comments

Nothing was said about the people who direct ed, the eyes that see for him.  I suggest a volunteer program that will be the eyes for people like ed.  There are plenty of good people out there who are retired and computer savy who would volunteer a couple hours a week to be the eyes.  is this the intention? where can one sign up.
I would like more information on this inspiring dream for the blind.  My son is totally blind so I would like all the information I can get.
Thank you sooooo much.
Thank you for this story.  I've lost the sight in my left eye almost completely and, honestly, the doctors have no definitive answers.  So, yes, I'm fearful of the obvious - when will the right eye go?  I want to keep living a fulfilling life if that happens and I so appreciate what Ed has come up with.  Kudos to you, Ed!!! Very cool.
PLEASE - SWND ME ANY/ALL LINKS YOU MIGHT HAVE SUCH THAT I MAY CONTACT ED AND HIS ORGANIZATIONS. THIS IS THE ANSWER TO MY LIFE LONG DILEMA - SIGHTED ASSISTANCE,REMOTELY MONITORED FOR SAFETY AND GUIDANCE.
THANK YOU FOR BRINGING THIS TO MY ATTENTION!
hi i was moved by this story & highly wish to be a guide please pass my info along to ed gallagher thank you very much have a great day d m kane
My husband is blind,(who is 41), has been blind since he was 12.  He had a brain tumor.  We are ALWAYS looking for new, inventive ways for him to get around, see things and be more active.  This is a really great idea.  I just wonder how affordable it's going to be.  We're both on Social Security and, although he does work, it's part time and minimum wage.  We can only afford so much....  In fact, we don't even HAVE the internet.  I'm at the library right now....
What a wonderful inspiration you are ED,keep up all your wonderful work.  I'll be waiting for more encouragement from you.  Sometimes all the challenges get very bleak. God Bless You, you've certainly opened my eyes.  

Sincerely,  Sharon S.
I live in New Jersey and would like to volunteer for BAADS. Would this be a possibilty living on the east coast.  
I would be interested in being the person who sits and does the "seeing" for a sited person.  Please contact me with information.  Thanks.
HI ED
ITS AMAZING WHAT YOU ARE DOING..I AM INVOLVED IN AN INDEPENDENT LIVING CENTER WHICH MY LATE HUSBAND FOUNDED. I HAVE FRIENDS IN SAN FRAN AND HOPE THEY LOOK YOU UP.WHAT WOULD YOUR MOM SAY NOW!!!!
GREAT STORY!! This is such a great thing for people with all types of other disabilities as well. It is also a limitless possibility for the employmnet of people with disabilities as well.
thanks for airing this!!!
My name is Kathy D. I live in Hilo, HI and was so inspired by Josh's story. I have a progressive eye disease called optic nerve drusen. I am already completely blind in my right eye & am slowly losing sight in my left. There is no known cure for this disease. He talked so much about support & companionship. I would love to just be able to e-mail him so I won't lose hope after my eyesight is gone.


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